Vacation, Special Needs, and What I Wore

Vacationing with a special needs child can be tough. I often wonder if it would be easier to stay home; routine, familiarity and sensory stuff at our disposal. However, a different environment allows me to learn more about Dan, see how he responds to new situations, expose him to new things, and enjoy him in a different context. So here's a little run down of our vacation, what I wore, and how we all did. 

Dan trashed our hotel room the minute we got there, lol.

The first day, I wore this top I made 2 years ago. I love it! It's a racerback with a draped color blocked front and low peter pan collar. So comfy and great for vacay. 

We spent a lot of time in the hotel pool downstairs. One of the things that keeps Dan calm is water. If he were in water all day, he would be so still and peaceful.

My oldest also enjoys water but is less adventurous in the pool. 

On the third day we made our way to the shore. I loved seeing this sign. Stronger than the storm...

I wore this shirt on the third day.  Small shirt to draped  tank, tutorial here

 Near the shore, we stopped to play miniature golf. Dan was not into it at all and he would not let go of his blanket but it's all about exposure to new things.

My oldest, on the other hand, loved it! He is land, while Dan is sea. Opposite sides of the spectrum indeed. 

Amusement park rides also calm Dan down. He loves motion. Water and motion are his favorites!  Here we are on the same train ride we took last year, I wrote about it in this post and took the same exact picture. This year I knew the drill; I went straight to the customer affairs office and asked for my bracelet, the bracelet that allows Dan to ride free because, well, he's "special".  It's interesting that they put the bracelet on the mother and not the child. Last year was the first year I had to grapple with the fact that Dan does indeed act "special". I couldn't hide behind the the late bloomer label anymore and he outed me as a special needs mom. 

My special needs mom coming out bracelet. 

All in all, we had a great time and it was a much needed change of scenery. 

The end of the summer is approaching. Would love to hear what you all did!   

An unexpected accessory



Dan and I riding the train




On my recent vacation to the Jersey Shore, I stopped by a cute little carnival that I knew my little Dan would love, sensory seeker that he is! Little did I know that I would be offered this unexpected accessory, a bracelet, which indicated to the attendants at the rides that I was traveling with a special neeeds child.

Daniel is now 5 and I guess this is the magic age , at least for him, where it has become apparent to the world that Dan is different. He doesn't necessarily look like a special needs child, except that he is tall for his age and still does not talk, insists on throwing himself on the floor, makes sing songy noises, and occasionally sticks his hand in his butt and smells it! lol. Okay, perhaps he does look like a special needs child!  If you know my story, I don't necesarily scream to the world that Dan has autism. I don't want it to define us but lately, it seems, he has been screaming it for me.   

Daniel absolutely enjoyed the carousel ride so I decided to get on line again to give it another go. The attendant on the carousel, a sweet older gentleman that reminded me of my father in law, discreetly asked "can I ask you a question?" I could tell he was treading very carefully, "is your child special needs?" I don't know what was coming next. Were we getting kicked off the ride? Had Dan's noises bothered the other carousel riders? I have to admit, I was getting a little defensive. I said "yes he is, why do you ask?" "Because he could ride for free!" He said. Wow! That was awesome! Those rides are freakin' expensive so I was overjoyed. With the tickets I had bought I would probably only be able to ride one other ride but now we were able to go on two or three more, woot hoot! This is one instance where I didn't mind Dan standing out. lol.

So I went to the customer service booth and got my cute little orange paper bracelet that said to the world that yes, Dan is different, we were indeed special and we deserve a little slack. I wish the world were more like this sweet little carnival.

I told my mother in law the story. I mentioned earlier in this post, that the man that had asked the question looked like my father in law, Auggie who is now deceased.  I knew she was going to say it, "Auggie was always very compassionate, I wonder if that was him, through that man, watching out for Dan." Maybe it was.